MEETers run for IMP
Click here to contribute and to support our campaign!
Watch here the MEET brochure!
MEETERS LAUNCHED A CROWDFUNDING CAMPAIGN
"RUNNING" FOR SUPPORTING THE INTERNATIONAL MITO-PATIENTS NETWORK
MEET fellows launched a crowdfunding campaign on kapipal website for collecting money in order
to help the “International Mito-Patients Network” (www.mitopatients.org), to develop a standard
therapy for dealing with muscular pain in mitochondrial diseases. The campaign objective is simple:
raising awareness about mitochondrial diseases and raising money to help IMP network to develop
a standard therapy for dealing with muscular pain in mitochondrial diseases. To launch this
campaign, fellows did a simple equation: mitochondria = energy = running, dancing, climbing,
biking. Therefore, as young and motivated researchers involved in the mitochondrial field they run,
dance, climb and bike to raise money. Indeed, fellows believe that participating to sport events is a
very good way to highlight the importance and the power of mitochondria and thus the importance
of helping people that are lacking healthy ones.
Mitochondrial patients worldwide, as represented by International Mito Patients, benefit from a
good network between patients, researchers, clinicians and caretakers. And this is also valid the
other way around: researchers, clinicians and caretakers benefit from a dialogue with patients. This
is the main reason for IMP to work closely together with the MEET Project.
IMP Mission is to increase the quality of life for people with mitochondrial diseases by facilitating
cross-border cooperation and collaboration among national patients' organizations. So, it is for this
reason that MEET Consortium and MEET fellows will collect money for IMP, to underly once
again the importance of collaborating among researchers, patients and clinicians, to fight
All the fellows will run the Copenhagen Half Marathon on September 18th 2016. A growing number of people willing to run for the cause are joining us!
HELP US TO RUN FASTER!
DONATE and RUN with us in COPENHAGEN!
It is all the more regrettable that we sadly record a lack of general awareness about these diseases. Until relatively recently, mitochondrial disorders were considered obscure, exceptionally rare diseases, but they actually are amongst the most common inherited human diseases.
We are 14 young researchers involved in the ITN MARIE CURIE Project “Mitochondrial European Educational Training” funded by European Commission within the frame of FP7 and affiliated to 9 world-leading basic science and clinical centers of excellence. We are working on the emerging mitochondrial medicine field and we really want to attract your attention on mitochondrial diseases! Besides several other activities, we will leave our laboratories to run the 21km of the Great North Run on Sunday 13th of September. Through our run we will launch a fundraising campaign addressed to the International Mito Patients (IMP) association. We will donate to IMP money collected in order to help the association to develop a standard therapy for dealing with muscular pain in mitochondrial diseases.
What about Mitochondrial Disease?
Mitochondrial disease is a collective term for a group of disorders that particularly affect the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems. It is a complex group of disorders, with many different symptoms and many different causes within the mitochondria.
Our body is made up of many different tissues, for example muscles, nerves, and livers. Each tissue is composed of small 'building blocks', called cells, and within each cell there are small objects known as mitochondria. The job of these mitochondria is to produce energy. Just like a power generator, they take in fuel (the food we eat) and burn it up to generate energy. If this process fails, the cell cannot function adequately and this can lead to disease. Disease of mitochondria appears to cause the most damage to those parts of the body which need a lot of energy: brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.
Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection. If the process of cell injury is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised.
What are the funds for
International Mito Patients is a network of national organizations dedicated to mitochondrial patients. The national patient organizations which are members of IMP are active and powerful in their own countries. By joining forces, IMP can represent a large group of patients and being their representative at international level (http://www.mitopatients.org/).
At present, IMP is working on raising funds to develop a standard therapy for dealing with muscular pain in mitochondrial disease. Indeed, it does not exist a standard protocol to deal with muscular pains in mitochondrial patients. As a result, mitochondrial patients receive treatment/therapy as the clinicians and therapists see fit, which may differ per country and per clinical approach.
Who we are:
The Mitochondrial European Educational Training (MEET) Project, funded within the frame of the FP7 PEOPLE MARIE CURIE ITN, is a multi-partners project with partners from 8 different countries. Among them, 8 world-leading basic science and clinical centres of excellence, 2 private industries named Khondrion and Seahorse, with direct interest in mitochondrial medicine, and 2 private industries that are INNOVA S.p.A and Ceub Centro Residenziale Universitario di Bertinoro that provide for all trainees the most fertile training environment possible.
We come from all over Europe and we all work now in a laboratory different from our country of origin. Our MEET project is indeed a multi-partner project that intends to mobilize the critical mass of expertise in the field of mitochondrial medicine, by linking partners from 8 different countries. The objective of this project is to produce the next generation of scientist who will lead the field of the rapidly emerging branch of mitochondrial medicine.
MEET goal is to create an ideal platform for the training of young investigators who develop a broad view of biomedical sciences working in such a multifaceted area of research and training inputs. MEET is coordinated by the Department of Medical and Surgical Sciences, University of Bologna, started on January 13, 2013 and will be carried out over a period of 4 years. The project coordination team is composed by: Dr. Giuseppe Gasparre (Associate Professor Medical Genetics Unit) and Paterlini Serena (Proposals writer and project manager).
MEET objectives are:
- to educate a young generation of scientist in the appreciation and dissection of the multifaceted aspects of mitochondrial medicine, through the organization of four integrated Work Packages divided into Tasks;
- to implement up-to-date and innovative technologies and integrated methodologies in the field of mitochondrial physiopathology to dissect disease mechanisms and generate animal models;
- to develop career pathways in order to fill in the current need for researchers with an all-round knowledge of both biological, clinical and managerial issues related to the rapidly emerging branch of mitochondrial medicine.
MEETers run for International Mito-Patients
The donation system is now active!
Click here to contribute and to support our campaign!
The MEET researchers launched a fundraising campaign to support the International Mito-Patients (IMP) association; a network of national patient organizations involved in mitochondrial diseases.
MEETers will run for charity from Newcastle "Great North Run" to Copenhagen "Half Marathon" with a lot of steps in between!
The donation system will be active
from December 2015 until
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Sport and dissemination events:
Friday 26th of September, 2014: Researchers' Night in Bologna, Italy
Sunday 17th of May, 2015: Susan G. Komen® Race for the Cure in Rome, Italy
Friday 5th - Sunday 7th of June, 2015: 5th Convegno Nazionale MITOCON in Bologna, Italy
Wednesday 17th - Saturday 20th of June, 2015: UMDF Symposium in Washington DC, USA
Sunday 13th of September, 2015: Great North Run in Newcastle, UK
Saturday 19th of September, 2015: Science: it's a girl thing at EXPO in Milan, Italy
Sunday 20th of September, 2015: road4energy in Nijmegen, the Netherlands
Friday 25th of September, 2015: Researchers' Night in Bologna, Italy
Wednesday 28th - Friday 30th of October, 2015: 6th World Congress on Targeting Mitochondria in Berlin, Germany
Sunday 15th of November, 2015: Zevenheuvelenweekend in Nijmegen, the Netherlands
Friday 29th - Saturday 30th, 2016: MEET Symposium in Nijmegen, the Netherlands
Sunday 6th of March, 2016: Semi Marathon de Paris, in Paris, France
Thursday 31st of March - Saturday 2nd of April, 2016: Salon du Running, in Paris, France
Saturday 9th of April, 2016: "G. Cantoni" High School mini-conference, in Treviglio, Italy
Sunday 8th of May, 2016: Wings for Life World Run, in Breda, the Netherlands
Sunday 8th of May, 2016: Bike Pride, in Bologna, Italy
Saturday 28th of May, 2016: "Leopardi-Majorana" High School meeting in Pordenone, Italy
Saturday 2nd of July - Thursday 7th of July, 2016: EBEC, in Riva del Garda, Italy
Saturday 6th of August, 2016: Serena Paterlini's interview at Radio24 station, Italy
Sunday 18th of September, 2016: Copenhagen Half Marathon, in Copenhagen, Denmark
Wedneday 28th of September, 2016: European Researchers' Night in Brussels, Belgium
Friday 30th of September, 2016: Researchers' Night in Bologna, Italy
Monday 12th of December, 2016: MEET final scientific and dissemination event in London, UK