Linkedin    instagram    you tube channel SITEMAPCONTACT US
 
LOG INForgot your password?
User
Password
To request a username and a password email to: user@itn-meet.org
LATEST NEWS
The Mitochondrial European Educational Training
Project Consortium (MEET)
funded within the frame of PEOPLE Marie Curie Actions
organized its scientific and dissemination final event

Mitochondrial dysfunction:
understanding the problems to find solutions

Goodenough College, Mecklenburgh Square, London WC1N 2AB
London, December 12, 2016
 
REGISTRATION DEADLINES:
DECEMBER 4, 2016 (6,00 P.M. - BRUSSELS TIME)
 
Please register here.
 
**Please note that there is only a limited places available for this event,
and the places will be assigned in a ‘first come first served’ basis**
 
NEWS FROM THE CONSORTIUM

31/10/2016

 

THE FIRST IRISH MITOCHONDRIAL CONFERENCE IS CANCELLED

 

The MEET Consortium is very sad to announce that the first Irish mitochondrial Conference,

which was planned in Dublin on the 22nd of March 2017, unfortunately is cancelled.


The organizers, the two mito-twins Ann and Margaret Kennedy, suffer from health issues to such an extent that it is no longer feasible to organise the conference.

 

The International Mito Patients (IMP) organization regrets this very much, because mitochondrial patients wherever in the world deserve good information and support.

 

Brace yourself Ladies!

 


 

29/09/2016

 

Mitochondria are fascinating organelles...but you already know that!

Here is a great opportunity to keep yourself up to date on your field:

https://britishgeriatricssociety.wordpress.com/2016/09/26/mitochondria-mobility-and-ageing/

 

Did you like it?

 

If so, here is something else for you: 

 

International Symposium on skeletal muscle oxidative-metabolism and fibre-type plasticity

Friday October 21, 2016
Imperial College, London, UK 

 

Speakers include Stefano Schiaffino and Marco Sandri from Padova, David Glass from Novartis Institutes at Harvard, Rhonda Bassel-Duby from Eric Olson's group at UT Southwestern and Anna Krook from Karolinska. 

 

First ever international conference from the world's leading experts on skeletal muscle oxidative metabolism. It brings together international experts, who would otherwise not be seen collectively at any other conference, to present their newest data.

 

The number of attendees is capped at 100 and the aim is to have a small intimate meeting facilitating networking. 

 

For further info click here

 


 

 

29/09/2016

 

EUROPEAN RESEARCHERS' NIGHT
Brussels (Belgium) - September 28, 2016
 
On September 28, 2016, our MEETer Experienced Reseacher Manar Aoun
took part in the European Researchers’ Night in Brussels
to talk about food and health next challenges.
This  event, open for all, was organized by the European Commission in order to get closer,
especially young people, to Science, Research and European opportunities.
 
Manar also took this opportunity to present the MEET project
and its dissemination and fundraising activities,
inviting people to join the MEET crowdfunding campaign “MEETers run for IMP”.

 

Join the MEET crowdfunding campaign!

Make a donation here!

 


14/09/2016

 

 

On September 6, 2016, the Italian association of social media advertising Bandieragialla published an article about the MEET project’s crowdfunding campaign MEETers run for IMP.

 

Since 1999 Bandieragialla website represents the main portal of social communication in Bologna (Italy) in order to promote a culture based on integration and human rights’ respect.

 

Here the article!

 

Enjoy your reading!

 


 

13/09/2016

 

 

Irish patients with mitochondrial diseases are in very much isolation.

We do not have good genetic services to find the disease.

We don’t have any mitochondrial specialist or any mitochondrial unit.

So, patients are going to very different places.

I’d like to say to the patients in Ireland:

«Keep heart! Keep strong! Keep fighting!»

because Ann and I we really will try and wave the banner for all of us in Ireland!

Margaret Kennedy

 

Here is an extract from the Irish mito-twins Ann and Margaret Kennedy’s video-interview, realized during the MEET Symposium From bench to bedside, and back: Patients MEET Researchers (Nijmegen, the Netherlands – January 29-30, 2016). After eight months, they keep their promise and they are organizing in Dublin on March, 22, 2017, the first Mito Ireland International Symposium 2017.

 

Take a look to the programme!

 

Great Margaret and Ann!

 

Follow them on the specific Facebook page

and surf on their blog!

 


 

08/08/2016

 

MEET ON RADIO 24!

 

Last Saturday MEET project manager, Serena Paterlini, was interviewed by Federico Taddia, host of the Italian radio programme L’altra Europa, online at Radio24 station.

Since 1999 Radio24 has one of most cross-thematic schedules dealing with news, economics, work, culture, sport, society and health, always informing and keeping company to its audience passionately.

During the interview Serena talked about the project’s coordination team and partners, about the Nijmegen Symposium From bench to bedside and back: Patients MEET Researchers (January 29-30, 2016) and, finally, about the MEETers run for IMP crowdfunding campaign.

 

Here you can find the whole radio programme episode. (Serena’s interview from the 38th minute onward).

 

Enjoy the listening!

 


 

20/07/2016

 

MEET CROWDFUNDING CAMPAIGN

 

 

Seven months ago, our young Marie Curie fellows launched a crowdfunding campaign

on the Kapipal website to collect money in order to help

the “International Mito-Patients Network” (www.mitopatients.org),

to develop a standard therapy for dealing with muscular pain in mitochondrial diseases!

 

We collected 2,957 euro thanks to 40 donors coming from all over the world!

Now we want to reach our objective: collecting 4000 euro within December 2016!

Help us to make our dreams true. Donate and run with us!

 

Next event: Copenhagen Half Marathon (Copenhagen – September 18, 2016)

 

Help us to run faster!

Join our cause making a donation!

DONATE

http://kapipal.com/projects/meeters-run-for-international-mitopatients-network/

 

 


 

08/06/2016

 

MEET NEWSLETTER is online!

 

Special issue on the MEET crowdfunding campaign “MEETers run for IMP”!

 

The special issue of the 10th MEET Newsletter will focus on the MEET crowdfunding campaign "MEETers run for IMP" launched on Kapipal website several months ago.

Read it and help us to spread mitochondrial diseases' awareness.

 

Join our cause! Make a donation on Kapipal website!

 

Enjoy the reading!


23/05/2016

 

MITOCON

6TH MITOCHONDRIAL DISEASE NATIONAL MEETING

 

The MEET Consortium is very glad to announce the MITOCON "6th Mitochondrial Disease National Meeting. Diagnosis, Therapies and Everyday-life management", that will be held in Rome (Italy) on May 27-29, 2016

 

This last edition of MITOCON Convention on Mitochondrial Diseases will welcome and bring together more and more patients and families and provide inspiration to even more physicians and

researchers who deal with mitochondrial diseases, because "the more we are, the better we are".

 

In scientific sessions contributions of experts from all over the world will help participants create a stimulating experience for all those who work every day in diagnosis and care of MITOCON patients.

 

In sessions addressed to patients and families MITOCON will not only try to inform the participants on the state of the art of the diseases, but it will also try to stimulate and facilitate exchanges and discussions on personal experience, opinions and ideas among those studying mitochondrial diseases and those who live with the disease.

 

For further info click here.

 


09/05/2016

 

MEET SUNDAY!

 

Yesterday MEET fellows participated into two different sport events: Wings for Life World Run in Breda (the Netherlands) and Bologna Bike Pride 2016 (Italy).

At Wings for Life World Run our MEETer Sarah Foriel ran alongside Blaine Penny, the Canadian winner of Niagara Falls International Marathon 2015 that ran for his son Evan, who suffers from mitochondrial disease.

At Bologna Bike Pride MEET supporters crew rode almost 10k around the city for disseminating the crowdfunding campaign “MEETers Run with IMP”. MEET project had also a “booth”  for handing out the MEET children's colouring science booklet together with other MEET gadgets.

 

Go MEETers! Run for IMP! Bike for Charity!

 

 


 

14/04/2016

 

My name is Anaïs. I am a PhD student in microbiology and fan of science. I really appreciate and encourage the communication about research in science, in order to better inform the public, and especially the patients, about the recent advances, and most of all to give hope by showing that things are progressing. Running is a beautiful metaphor to say that one moves forward. Finally, I chose to run for your organization because I was sensitive to the message you convey: The Run and good humour to talk about serious topics.

Anaïs

 

 

I am Antoine and I'm 33. I'm an engineer in the field of renewable energy. I am the father of two young children (a 3-year-old daughter and a son of 10 months) who are my reason for living. Thus, I easily put myself in these families’ shoes. I was particularly touched by their struggles to promote research and ensure that we get interested in those rare diseases. I thought that if even only 10 runners saw my T-shirt and questioned themselves about the MEET, that would be better than nothing (I always look at that of others)!

Antoine

 

 

My name is Michael, I'm 44 years old and I have 2 children: David, who is 14, and Karen who is 12

years old. Karen is affected by mitochondrial disease since she was 2 but she gives us a lot of energy everyday. Twice a week I run about 12 km. It helps me going forward. My wife, Emma, met the MEETers on January during the MEET symposium. Together they have organized the stand in Paris for the running event and I thought it was a great idea to support them by, myself, running this very same week end. My challenge was to run a 24 km trail in the city of Rieumes, close to Toulouse, and I made it! I was so proud to be able, by such means, to bring my own contributions and to help the mito-community. Indeed, my wife is part of A.M.Mi. and IMP and she often goes to different meetings abroad that I cannot really understand, but here, I have been able to help and to convey an important message: Mito-patients needs energy, and by running we can share, we can give some of our energy, to promote awareness about mitochondrial diseases!

Michael

 

Anaïs, Antoine and Michael,

three MEET supporters that ran with a MEET t-shirt

at the Schneider Electric Marathon de Paris (42 km - on April 6, 2016)

and at the 24 km trail in Rieumes (France) on April 3, 2016.

We want to thank them for having joined our cause!

Thank you again guys!

 


 

13/04/2016

 

The MEET Consortium is very glad to inform you that Mara Mennuni will run the 10k route at MSF Fun Run London 2016 (Regent's Park - April 23, 2016) in order to raise money for Médecins Sans Frontières, a very famous independent humanitarian medical aid organization.

 

For further info click here.

 

 


 

01/04/2016

 

MitoFit Training Camp 2016 - for and with mitochondrial scientists

July 07-13, 2016
High Altitude Training Center Kühtai, Kuehtai (Tyrol, Austria)

Maximum 99 participants

 

The project MitoFit aims at developing novel laboratory standards and diagnostic monitoring of a mitochondrial fitness score. With an international team of outstanding mitochondrial experts, the MitoFit Training Camp will provide a unique opportunity to receive first-hand introductions to state-of-the-art diagnostic monitoring of mitochondrial respiratory function. Diverse areas are covered such as protective medicine, exercise physiology, mitochondrial pharmacology, aging, and comparative mitochondrial physiology (cell types, tissues, species).

 

Early bird registration before May 15th.

 

For further info click here.

 


 

31/03/2016

 

MITOCON

6TH MITOCHONDRIAL DISEASE NATIONAL MEETING

 

The MEET Consortium is very glad to announce the MITOCON "6th Mitochondrial Disease National Meeting. Diagnosis, Therapies and Everyday-life management", that will be held in Rome (Italy) on May 27-29, 2016

 

This last edition of MITOCON Convention on Mitochondrial Diseases will welcome and bring together more and more patients and families and provide inspiration to even more physicians and

researchers who deal with mitochondrial diseases, because "the more we are, the better we are".

 

In scientific sessions contributions of experts from all over the world will help participants create a stimulating experience for all those who work every day in diagnosis and care of MITOCON patients.

 

In sessions addressed to patients and families MITOCON will not only try to inform the participants on the state of the art of the diseases, but it will also try to stimulate and facilitate exchanges and discussions on personal experience, opinions and ideas among those studying mitochondrial diseases and those who live with the disease.

 

For further info click here.

 


 

30/03/2016

 

MEET SOCIAL NETWORKS!!!

 

The MEET project is spreading on many social networks!

 

Follow us on Facebook, Twitter, Instagram, LinkedIn and YouTube!

 

You can find all the icons in the top banner of the homepage!

 

 


 

24/03/2016

 

The MEET project at School!

 

Michele Giunta and Manar Aoun, Marie Curie fellows at Mitochondrial Research Group (UK) and FINCB (Italy), will organize a dissemination event addressed to students of the secondary school "I.S.I.S.S. 'CANTONI'” for presenting Marie Curie fellows opportunities, introducing the MEET project and underlying the importance of fundraising activities in the scientific field.

 

Michele, a young Italian researcher based on Newcastle Upon Tyne University (UK), and Manar, a Lebanese reasearcher who worked at Fondazione IRCCS Carlo Besta in Milan during her MEET project's training period, organized this event in order to share experiences, opportunities and knowledge around mitochondrial diseases .

 

The event, that will be held in Treviglio (Italy) on next April 9 (from 12,30 am to 1,30 pm), is included into the MEETers' activities funded by European Commission in order to spread increasingly informations about mitochondrial diseases and up-to-date ways to cure them.

 

Confirmed participation is kindly required.

Contact: profdiscienzeiis@libero.it

Deadline: March 31, 2016.

 

Conference leaflet is available here.

 


 

23/03/2016

 

 

Modern civilisation has based its specific foundation on the principle of liberty

which states that man is not a mere instrument to be used by others

but rather a main autonomous living being.

Altiero Spinelli (one of the Founding fathers of the European Union)

from Il manifesto di Ventotene

 

 

Yesterday, March 22, 2016 a series of deadly explosions, claimed by the Islamic State, rocked Belgium's capital. The MEET Project embraces Brussels people underlying, once again, the importance of staying human and of fighting terrorism and racism. Terrorists attacked the heart of Europe and its policy! Thanks to the EC funds, the MEET project offered 14 Marie Curie fellowships to young researchers coming from all over the world! This is the Europe that we want to support! All together!

 

Give Peace a chance!

 

The MEET Consortium and the MEETers

 

 


 

23/03/2016

 

The MEET Project at the Salon du running 2016

 

Two of our MEETers, ESR 1 Renaud Vatrinet and ESR 12 Sarah Foriel, will participate to the Salon du running 2016, that will be held at the Parc des Expositions exbition centre at Porte de Versailles (Paris) on March 31 - April 2, 2016. The event is a running exhibition, where several runners have the opportunity to take information about the new technologies available for running, technical clothing, nutrition, the next races in France - and much more. Our MEETers will be there together with A.M.Mi. Association contre les Maladies Mitochondriales, one of the member associations of IMP (International Mito-Patients Network) with which we kept in touch since the MEET Nijmegen Symposium. Renaud, Sarah, Brigittes, Maria and Carine will stay at the booth in order to introduce to the public the raising awareness about mitochondrial diseases and to invite people to join our fundraising campaign "MEETers run for IMP", that is still available on kapipal website.

 

Don't miss this very important event!

Come to Paris and join our cause!

Make a donation to support our campaign here!

 


 

22/03/2016

 

Wings for Life World Run 2016

 

The MEET Consortium is very glad to inform you that our MEETers will run the Wings for Life World Run 2016, that will be held in Breda (The Netherlands) on May 8, 2016. On the basis of the amazing experience lived at the Semi-Marathon de Paris last March 6, 2016, our guys were invitated to participate by the International Mito-Patients (IMP) Network to join MEET fundraising campaign "MEETers run for IMP". They will run together with Blaine Perry, the Canadian winner of Niagara Falls International Marathon 2015. He runs for his son, Evan, that suffers from mitochondrial disease too.  

 

Follow them! Join our cause!

Make a DONATION on kapipal website!

 

When I run, I run for Evan.

Every stride I think of him and wish he could experience

the beautiful movement and joy of running.

Blaine Penny

 


 

21/03/2016

 

An essay on 'influence'

 

Dear MEETers,

I read today what you had hoped to achieve at Nijmegen on your webpage. In response to this and in a response to 'cause and effect' i wish to answer to your achievements.

Remember i am aged 63yrs of age from a very small country that was always poor, not advanced like so many other european countries. We celebrate only 100yrs of independence this coming easter and we celebrate our national day tomorrow St. Patricks day. For this, many monuments and water courses will be glowing green in our honour around the globe. For some reason the world loves the Irish, (it rather defeats me this, but they do)! I am lying on my bed right now Meeters.  I know one of you may be rock climbing, and i know others may be 'in training' for running - for us! I am thinking of you all. Remember that line up at the end of the symposium as you were given a 'clap clap' from us looking on? What do i remember? I remember Serena being a type of wee female 'jesus' not washing my feet exactly but as sweetly she was putting my feet up so they felt good  when we returned to the talks in the auditorium and peeling off my slippers. My feet cannot cope and do not like being enclosed,they burn horribly. My legs cannot cope being at right angles and this is the way i normally sit. But to have a young lady, unknown to me smile nicely and ask me if i am comfy and making sure i am comfy is a very new experience entirely. No one has ever treated me like this. No one has ever accepted me like this, ever. No one has even made Ann visible let alone 'make mito visible' in such a way. All through kindness and youth and a desire to engage and to touch hearts. Do you realise how much you have touched hearts? Do you fully realise how long that for ever now soft white floaty feathers of gentleness wafts in my brain as I think of you, that wonderful sort of love there for you from me.  I was born in a small country which i have only left twice in my life for foreign lands.  I was born deafened and grew up with no hearing aids at all. I am profoundly/severely deafened since birth from congenital rubella syndrome, another rare disease claimed eradicated but not so. It is not. I was also born 'different' possibly because of rubella.  I was a scared child and grew to be a frightened adult.  I hid away from the world for decades. I was creative and painted in oils and exhibited to much acclaim and I wrote and had published a few childrens books which I also illustrated, some made into kids tv programmes.  I also got into film school in the UK but was too shy to go. I worked hard but alone away from a maddening world for me. I never saw my family. No one ever called to my home.  I never went to films, theatre, enjoyed meals out, was taken out or had friendships. I was a lost soul. I walked miles and miles every day for decades once the studio lights got turned out I then walked. My company was a dog. Then I got very ill with crohns disease and I nearly died. So thinking of this awful solitude I didn't really want I decided to get help to 'come out and be brave and join society' it worked, I became human for the first time around 2002. I woke up to the fact that I was actually 'ok'. It’s nice to know even if it came late, too late really. Once I found happiness I got sick again....lol! I was left lying in bed with no one ever trying to find out what was wrong with me. I researched, a bit like you are doing now. I did it alone and watched my blood results. I researched the high markers and the different levels until I thought I had nailed the malaise. I then fought to get out of Ireland and by this time I could not walk at all and was in that wheelchair all the time. I got out to the UK where I was diagnosed with sjogrens syndrome. I lost all my teeth through disease.
At one point the irish health system left an attractive middle aged woman with two teeth either side of her main two front teeth and that alone in her mouth.  They left those 'fangs' for two years. Finally they pulled them and gave me dentures. I learnt to walk again, alone on a very long pier by the sea on the east coast of Ireland. I could only walk a few hundred yards each time if that and when I did I rang my twin in the UK where she lived and told her how far I had made it that day. A year after my first 'out' to the UK hospital I went back. No longer in the wheelchair or on sticks I walked into that doctor's room unaided. With outstretched arms he exclaimed 'oh, my miracle patient!' I was! When all agreed I had come to their unit 'a mess' and now the joy was full felt by all. I then did more research and found fabulous Prof. Michael Farrell in Beaumont Hospital who was interested in mitochondria.  He was a pathologist there, he befriended me and suggested I have a  muscle sample taken and he had it sent to Newcastle. Three years after this he told me he had not known that he was married to a girl who was in my class in school!  We had struck a great friendship.  He retires this year and an honourable man not afraid to use swear words! But joy was nothing to match meeting all of you in Nijmegen. I had been having a dreadful time in Ireland before I flew away from it all. I came to Nijmegen very tired already from stress. I hired a scooter and us twins belted around the town, watching for all the traffic going in all the wrong direction! (we drive on the proper side of the road!!) I was in a bit of a heaven I think. But that wasn't really the heaven now was it? - you were. The fun, the faces, the engagement and the chat. The need and wish to encourage, to learn and to hear was immense. I met a mito patient from Scotland, Germany and also Holland. I met those who could tell me about how it all works in their own country and I linked back with Elja van de Veer and cooked a plan for Ireland. I met Serena and the 'Medicine Man' and far more besides. But the day a young pretty woman from Bologna lifted my feet to place gently on a chair and remove my fluffy slippers marked me for good in this heart of mine. She will never go away now I do not think. Carved there I say now forever. But the swirl of white feathers will represent all the Meeters. You gave me SO MUCH, words can never describe it.  You were to me, wonderful. All of you.  I think the world of science for such a disease as this is in very good hands now. It leaves me joyous. It has given me personal strength and when I had had a terrible life on such things I cannot ever divulge to you I am afraid,  I am now pleased to say my faith in humankind has been ignited.
I have been very bruised and hurt by life, punishing experiences and events, time and isolation.  Not anymore. It’s all changed. For good.  Forever. By you, all of you. With thanks. So, for tomorrow remember Ireland and I will remember you....

 

Ann Kennedy

 

This letter was sent by Ann Kennedy, one of the MEET Nijmegen Symposium mito-patients participants awarded (together with her twin sister Margaret) with a MEET  full-fellowship. The MEET Consortium decided to share this letter for underlying, once again, the importance of communication among patients, researchers and clinicians and the importance of patients' direct participation in research. MEET, together with the International Mito-Patients (IMP) Network, will support Ann and Margaret in their fight for asking Irish mito-patients’ human rights respect.

 

Go girls, go Fast! Go for Irish mito-patients!

 

For further info on Ann and Margaret Kennedy’s activities follow them on their blog here.

 


 

15/03/2016

 

"MEETers run for IMP" Facebook page!

 


The MEET project has a new Facebook page now! It is exclusively dedicated to MEET fundraising campaign "MEETers run for IMP", which our young researchers launched on December, 2015,

to collect money for International Mito Patients Network (IMP).

 

Follow us! Join our cause!

 

Watch our new Facebook page here!

 


 

15/03/2016

 

MEET 9th NEWSLETTER

 

MEET 9th newsletter is now available online!

 

For the occasion, we focus on our passed Symposium

"From bench to bedside, and back: Patients MEET Researchers"

(Nijmegen, the Netherlands - January 29-30, 2016),

explaining the importance of communication among patients, researchers and clinicians

and on patients' expectations from this experience.

 

Enjoy the reading!

 


 

15/03/2016

 

KENNEDY TWINS' VIDEO-INTERVIEW

 

The MEET Consortium is glad to inform you that Margaret and Ann Kennedy video-interview took  in Nijmegen at the MEET Symposium “From bench to bedside, and back: Patients MEET Researchers” (January 29-30, 2016), is available on our YouTube channel.

 

These two Irish mito-patients twin sisters are fighting and asking for Human Rights respect. Video contains an introductory message from the International Mito-Patients (IMP) Network Chairman, Elja van der Veer.

 

Watch it here!

 


 

10/03/2016

 

MEET on MITOEAGLE

 

The MEET Project has been mentioned by MITOEAGLE project! MITOEAGLE network objective is to improve knowledge on mitochondrial function in health and disease related to Evolution, Age, Gender, Lifestyle and Environment.  

 

For further info visit the specific website.

 


 

10/03/2016

 

SCIENCE4REFUGEES

 

The MEET Consortium is very glad to inform you that European Commission launched an initiative called “Science4Refugees”, a very philanthropic project for helping refugee scientists and researchers to find suitable jobs that both improve their own situation and put their skills and experience to good use in Europe’s research system.

 

 

MEET project is so proud to support this very important initiative!

 

For further info visit here.

 


 

08/03/2016

 

MEETers crowdfunding campaign goal is to collect 4000 euros.

Help us to make Dreams Real, DONATE!

Join our cause!

Make a donation on Kapipal website!

 

 

Some of our MEETers’s pics about Semi Marathon de Paris are available on MEET fundraising campaign’s web page "MEETers run for IMP".

 

Follow us on the MEET website! Stay tuned!

 


 

08/03/2016

 

Nobody thinks that it will be easy, but now it is time to stop making excuses

and to make the difference: fighting sexism in science!

 

 

Last Sunday our MEETers ran the 24th edition of the Semi Marathon in Paris and took the occasion to honour Madame Marie Curie by visiting her tomb at Pantheon. Ideally, MEETers wanted to thank her for the great inspiration she gave them, both scientific and on human field, during these last 3 years.

 

In the 7th MEET Pink newsletter, our Project Manager Serena Paterlini wrote a very passionate article about the importance of reducing gender gap in science in order to increase women participation in academic and non-academic science.

Only investing in training, social and political rights, science will be synonymous with bringing down barriers, innovation, freedom, life!

Madame Marie Curie is a scientific icon remembered, not only  for her pioneering work in the field of radiation research, but for her engagement in women's rights.

 

Nothing in life is to be feared, it is only to be understood. Now is the time to understand more, so that we may fear less (Marie Curie)

 

You can read it here.

 

Run with us again!

 


 

05/03/2016

 

 

MEET Consortium is very glad to wish good luck to all the MEETers

who will participate tomorrow to the Semi Marathon de Paris!

 

Run for IMP, guys!

Run for Mito Patients!

 


 

02/03/2016

 

MEET and IMP work together in campaign

 

Mitochondrial patients worldwide, as represented by International Mito Patients, benefit from a good network between patients, researchers, clinicians and caretakers. And this is also valid the other way around: researchers, clinicians and caretakers benefit from a dialogue with patients. This is the main reason for IMP to work closely together with the MEET Project. IMP has contributed a few times to this newsletter, has given presentations on the patient’s perspective, and is going to actively participate in the Symposium which will take place in Nijmegen (the Netherlands) in January next. Naturally, IMP was more than happy to learn that MEET decided to organize fundraising activities for one of IMP’s big projects: developing a rehabilitation standard for mitochondrial patients with muscular pains. Sport final event will be at the half-marathon of Paris on the 6th of March, 2016. On that day MEET, IMP and its French member organization A.M.Mi. (Association contre les Maladies Mitochondriales) will be present together. In the fight against this terrible and devastating disease it can be considered to be a highlight that researchers and patients work so closely together.

For more information on International Mito Patients: www.mitopatients.org

 

Elja van der Veer, IMP Chairman

 


 

29/02/2016

 

The day to put rare diseases in the spotlight!

 

 


 

19/02/2016

We have a new Speaker of the Assembly of Trainees

 

We are really glad to announce that Eliška Holzerová (Neuherberg, ESR8) has been elected as Speaker of the Assembly of Trainees for the next six months. 

 

Congratulations!!!

 


 

18/02/2016

 

PANEL DISCUSSION ON GENDER EQUALITY IN SCIENCE

 

"Nothing in life is to be feared, it is only to be understood.

Now is the time to understand more, so that we may fear less" (Marie Curie).

 

Let's fight sexism in science!

 

In this panel discussion senior members of the scientific community will be asked to share their thoughts on gender equality and the underrepresentation of women in STEM careers.

Please register here

 


 

12/02/2016

 

Mitochondria: balancing health and disease June 2016

June 14, 2016
Kennedy Lecture Theatre, Institute of Child Health, London, UK 

 

Participation is free, but registration is required.

The last meeting was fully subscribed, so please book early to avoid disappointment.

Registration deadline: June 2, 2016

 

Abstracts must be submitted at the time of registration. Once registered abstract amendments or submissions can be made by contacting the Abcam Events Team.

Deadlines:
Oral abstracts: May 10, 2016
Poster abstracts: May 10, 2016

 

All the info on the specific website.

 


 

11/02/2016

 

MEET TECHNICAL T-SHIRTS!!!

The MEET technical sports t-shirts are now available!!!

You will be proud of wearing them!

Make a donation on kapipal website for supporting the MEET campaign for collecting money for IMP, an international association that takes care of patients suffering from mitochondrial diseases.

Join our cause! Run with us in Paris!

 


 

05/02/2016

 

The MEET symposium

From bench to bedside, and back: Patients MEET Researchers

(January 29-30, 2016, Nijmegen, the Netherlands)

 

We thank you again patients for having shared your stories and experiences with us!


Although we are not still able to answer to many questions, we want to reassure you,

without offering false hopes, that we are on the right way!


Together we can make a difference and give research a chance!

 

The MEET Project

 

You can watch some pics of the event in our MEET Symposium web page.

You can also find all of them on our Facebook page.

 


 

04/02/2016

We are glad to share with you this initiative organized by the Croatian Alliance for Rare Diseases

 

Last year the Alliance started a campaign called “Hug for Rare Diseases” that consisted of gathering photos of hugs with the sign “Hug for Rare Diseases” and posting them to the web and Facebook page of the Alliance. As continuation and upgrade of this campaign, this year the Alliance will try to break the Guinness record in the category of the largest online photo album of hugs. To achieve that goal the Alliance need to gather more than 108,121 photos in 7 days. Pictures will be collected during one week, starting Sunday, February 21st and finishing Saturday, February 27th. So, let’s Hug!

 

For info, please visit

http://www.rarediseaseday.org/country/hr/croatia

 


 

03/02/2016

 

EBEC 2016 - 19th European Bioenergetics Conference

July 2-7, 2016
CONGRESS CENTER, Riva del Garda (Italy)

 

The abstract submission for the 19th European Bioenergetics Conference, that will be held in Riva del Garda (Italy) on July 2-7, 2016, in now open!

 

All the info on the specific website.

 


 

27/01/2016

 

MEET SOCIAL NETWORKS!!!

 

MEET is on Twitter now! Click here to watch our new social network page and be our follower!

And don't forget our Facebook and LinkedIn pages too!

You can find all the icons in the top banner of the homepage!

 

 


 

22/01/2016

 

 

 

 

 

 

 

 

 

Ann Kennedy and her twin sister Margaret.

For surfing on their blog please visit http://awnyahdaysay.blogspot.it/

 

 

Dear Miss Paterlini,

(or that could be just Serena!) my twin sister and myself live in a small village in the Republic of Ireland. We are being treated and investigated by the Mitochondrial disease unit in Newcastle UK. We both are passionate about advocacy and campaigning for the rights of those with disabilities.in fact Ireland is only one of three in Europe who have not yet ratified the Human rights convention on the rights of those with disabilities. ALL disability groups have been campaigning for this for almost ten years. My twin and I by experience now have full knowledge of how poorly those with Mitochondrial disease are cared for in Ireland. We beg to know more, understand more and bring back more to the service of those in Ireland. the situation is very bad here there is NO consultant who is specially trained in Mitochondrial disease in Ireland. Most have to go abroad for help, through the inter-governmental schemes, or do so privately. Obvious despair is rife within groups in Ireland struggling with the rare disease of Mito disease. We both have heard their stories. (…)

Me and my sister will bring back all we hear at MEET. We are positive, sick, wheelchair users, grumpy, alive and spirited. We are advocates, enthusiastic for change for we have both in our own disease been brought to the depths of despair. I would relish the fellowship for Meet, to allow my twin sister and me to travel. We are not able to afford this travel etc. by ourselves. I never worked as I always was unwell and now we have to struggle with a bad and poor healthcare system. We would use this travel to gain insight we can then bring back to Ireland. We are going to Honour the committeemen the IMP has stated to come to Ireland and try, attempt to bring awareness here after i invited them to do so. We are going to be the people we want to be, make changes in Ireland for the Irish Rare disease group of mitochondrial diseases. I hope my inspirational letter for fellowship will be considered and accepted.

And as we say here in Ireland 'nothing ventured, nothing gained. 

GOD LOVES A TRIER.

 

Ann Kennedy motivation letter sent us for attending the MEET Symposium.

We asked Ann the permission of publishing her motivation letter, we decided to put it on line,

in order to underline once again, the importance of creating a bridge among researchers,

patients and clinicians.
Ann and Margaret, we are waiting for you in Nijmegen!

 

***

 

List of MEET Fellowships awarded for attending the Symposium

"From bench to bedside, and back: Researchers MEET Patients"

that will be held in Nijmegen (the Netherlands) in January 29-30, 2016.

You can find all the informations about venue & travel here.

 

We are very glad to announce that, thanks to EC support, 11 fellowships addressed to patients or to their Representatives, have been awarded!

 

 

Name

Surname

Country

1

Cristina

Catoni

Italy

2

Ann

Kennedy

Ireland

3

 Margaret

Kennedy

Ireland

4

Antonio

Sánchez Alcazar

Spain

5

 Jain

Mukesh

India

6

Jasna

Ivkic

Austria

7

Marina

Tsartsara

UK

8

Matthew

McLaughlin 

UK

9

Blasko

Dimkovski

Germany

10

Wil

Reimer

the Netherlands

11

Domenico

Porcelli

Italy

 


 

21/01/2016

 

SYMPOSIUM'S VENUE & TRAVEL INFORMATION

 

The MEET Symposium

"From bench to bedside, and back: Researchers MEET Patients"

is coming soon!

 

You can find all the venue & travel informations here.

You can also download a paper copy on our specific website page.

 



 

20/01/2016

 

MEET MINI-CONGRESS

ON MITOCHONDRIAL MEDICINE

 

The MEET Consortium is very glad to invite you to its Mini-Congress on Mitochondrial Medicine that will be held on January 28, 2016 in Nijmegen (the Netherlands).

 

Here the complete program.

 


 

06/01/2016

MEET SYMPOSIUM 2016
From bench to bedside, and back: Patients MEET Researchers
Nijmegen, the Netherlands

DEADLINES EXTENSION

The MEET Consortium is glad to announce you that deadlines for registering to the Symposium have been postponed to

 

January 15, 2016 at 18.00 (Brussels time)

Free registration is online here.

DON'T FORGET IT!

WE ARE WAITING FOR YOU!


21/12/2015

MEETers run for International Mito-Patients

The donation system is now active!

Click here to contribute and to support our campaign!

The MEET researchers launched a fundraising campaign to support the International Mito-Patients (IMP) association; a network of national patient organizations involved in mitochondrial diseases.


18/12/2015

 

MEET SYMPOSIUM 2016

The Mitochondrial European Educational Training (MEET) Network presents:
From bench to bedside, and back: Patients MEET Researchers
MEET Symposium 2016, Nijmegen, the Netherlands

DEADLINES EXTENSION

The MEET Consortium is glad to announce you that deadlines for sending fellowships applications and for registering to the Symposium have been postponed to

 

January 4, 2016 at 18.00 (Brussels time)

 

We remind you that Fellowships are addressed ONLY to patients or

Representative of Patients’ organizations.

Applicants for fellowships must submit their request together with a reference letter from

Patients’ organization with whom applicants are collaborating or

with a motivation letter with a cover letter.

 

Applications must be sent to serena.paterlini2@unibo.it

 

 

Free registration is online here.

DON'T FORGET IT!

 

WE ARE WAITING FOR YOU!

 

 

 

We take this occasion for wishing you a Happy New Year

 


 

09/12/2015

 

MITOCHONDRIAL MEDICINE: DEVELOPING NEW TREATMENTS FOR MITOCHONDRIAL DISEASE

4-6 May 2016
WELLCOME GENOME CAMPUS, Hinxton, UK

 

This conference will bring together world leaders in the field of translational mitochondrial medicine in an interactive programme designed to engage and inspire a new generation of mitochondrial researchers, who will harness this new technology to prevent and treat these devastating diseases.

 

The leaflet of the conference is here.

Every other info on the website.

 


 

30/11/2015

 

*** SYMPOSIUM FELLOWSHIPS' NEWS ***

 

Please read all of the information carefully before you apply!

 

The MEET Consortium offers 15 fellowships (covering travel, accommodation and subsistence costs) to attend the Symposium.

Fellowships are addressed ONLY to patients or Representative of Patients’ organizations.

 

Applicants for fellowships must submit their request together with a reference letter from Patients’ organization with whom applicants are collaborating or with a motivation letter with a cover letter.

Applications must be sent to serena.paterlini2@unibo.it

Deadline for sending applications: December 20, 2015 at 18.00 (Brussels time)

 

We are Waiting for your applications!

Good luck Guys!

 


 

26/11/2015

 

MEET SYMPOSIUM FELLOWSHIPS ARE STILL AVAILABLE!

 

DON'T FORGET IT!

 

Here all informations about.

 


 

23/11/2015

 

MEET ON "IL SOLE 24 ORE"!

 

Today one of the most known Italian newspapers "Il Sole 24 Ore" has published an "Eventi" insert's article on the Mitochondrial European Educational Training Project inside of "Programmi e Progetti" section.

 

The article explains everything about project's creation, goals and activities together with three other boxes dedicated to "From bench to bedside, and back: Patients MEET Researchers" MEET Nijmegen Symposium (January 29-30, 2016), "MEETers run for IMP" MEET fundraising campaign and, last but not least, the importance of training for fighting scientific gender gap and sexism (leading argument of last MEET newsletter).

 

You can find the whole article here.

 

Enjoy the reading!

 


 

19/11/2015

 

"From bench to bedside, and back: Patients MEET Researchers" MEET Nijmegen Symposium is coming soon!

 

Don't forget to register to the specific link for free!

 

Deadlines: December 22, 2015.

 

Fellowships opportunities!

 

Please read all of the information carefully before you apply!

 

The MEET Consortium offers 15 fellowships (covering travel, accommodation and subsistence costs) to attend the Symposium.

Fellowships are addressed ONLY to patients or Representative of Patients’ organizations.

Applicants for fellowships must submit their request together with a reference letter from Patients’ organization with whom applicants are collaborating or with a motivation letter with a cover letter.

Applications must be sent to serena.paterlini2@unibo.it

 

Deadline for sending applications: December 20, 2015 at 18.00 (Brussels time)


We are Waiting for your applications! Good luck Guys!

 


17/11/2015

 

Despite the recent attacks, we keep on standing together: 
our fight is for mitochondrial patients, 
our fight is for what we believe is right.
Semi-Marathon de Paris we are coming!!!
#MEETisAWESOME
#MEETersRunForIMP

 


 

09/11/2015

 

November 2015 - December 2016

WELLCOME GENOME CAMPUS
Advances courses and scientific conferences 2015/2016

 

Wellcome Genome Campus Advanced Courses and Scientific Conferences is the only UK-based programme providing open postgraduate courses and conferences focused on biomedicine. Events are held in dedicated facilities at the Wellcome Genome Campus in Hinxton, a short distance from the historic city of Cambridge and home to the world-famous Wellcome Trust Sanger Institute and EMBL-European Bioinformatics Institute.

 

The complete agenda of advanced courses and scientific conferences 2015/2016 is here.

 


 

20/10/2015

 

Join the MEETERS! Run with US!
HELP to support International Mito-Patients Network to develop a standard therapy for dealing with muscular pain in mitochondrial diseases.
Follow the MEET fundraising campaign! Watch our promoting video on YouTube!


Nothing in life is to be feared, it is only to be understood. Now is the time to understand more, so that we may fear less. (Marie Curie)

 


 

19/10/2015

 

The complete program of "From bench to bedside, and back: Patients MEET Researchers" MEET Symposium 2016, Nijmegen, The Netherlands 29-30 January 2016 is now available here.

 

Moreover, the registration link is here.

 


 

05/10/2015 

We have a new Speaker of the Assembly of Trainees

 

We are really glad to announce that Eligio Iannetti (Nijmegen, ESR11) has been elected again as Speaker of the Assembly of Trainees for the next six months. 

 

Congratulations!!!

 


 

29/09/2015

MEET WORKSHOP ON "Mitochondrial Replication & Mitochondrial Protein Synthesis Assays"

 

Dear MEETers,

 we would like to remind you about the next MEET Workshop 10-12 December, 2015, that will be held in The Francis Crick Institute, Mill Hill Laboratory, London, UK. You can find all the information here or in the "Training Event" section in this website.

 


 

25/09/2015

RESEARCHERS' NIGHT 2015

 

MEET researchers will partecipate to the event "The Researchers' Night 2015" that will be held on September 25, in Bologna. During the night the MEETers will describe to the general public, the activities and objectives of the project they are involved in. It wil be an interesting occasion to get close the young public and the world of science.

 

So, come to visit us

MORE INFORMATION

 


 

14/09/2015

 

Saturday September 19th, MEET fellow ER14 Manar Aoun will be volunteering in Milan at Expo during the event "Science: it's a girl thing". Let's visit her at EXPO!

 


 

08/09/2015

 

MEETers are attending the 11th MiPconference on Mitochondrial Physiology in Luční Bouda, Pec pod Snezkou, Czech Republic. Follow them on MEET facebook page!

 


 

30/07/2015

 

The Mitochondrial European Educational Training (MEET) Network presents:
From bench to bedside, and back: Patients MEET Researchers MEET Symposium 2016, Nijmegen, The Netherlands 29-30 January 2016

                                           

MEET ESRs and ERs are managing the symposium organization. Further information will follow. Registration will be open here soon.

 

Webpage (under construction): http://www.itn-meet.org/MEET-Symposium-2016

 

Facebook page: https://www.facebook.com/events/534903219995435/

 


 

21/07/2015

MiP2015: Early registration deadline extended

 

Dear all,

 the MiP early registration and abstract submission is extended until July 31.

For more information:

MiP website

Registration form

Abstract format

 


 

20/07/2015

Interesting course for MEETers

 

Dear all,

 we would like to inform you about an interesting course for your training: Cardiolipin as Key Lipid of Mitochondria in Health and Disease, 30 September - 1 October 2015, Florence, Italy.

 


12/06/2015

11th MiPconference on Mitochondrial Physiology

 

Dear all,
 the registration for the MIP2015 conference is now open. You can find all the information in the MiP2015 website. This conference is one of the MEET Training Events, therefore all the MEET fellows will partecipate.
Early-registration deadline: July 14

 


 

11/06/2015

TRAINING COURSE ON SCIENCE COMMUNICATION

 

Dear MEETers,

 we would like to remind you about the INNOVA training course on Science Communication that will be held in Rome, Italy. You can find all the information here or in the "Training Event" section in this website.


 

10/06/2015

Interesting course for MEETers

 

Dear all,

 we would like to inform you about an interesting course for your training:

Cold Spring Harbor Asia conference

MEETERS LAUNCHED A CROWDFUNDING CAMPAIGN

"RUNNING" FOR SUPPORTING THE INTERNATIONAL MITO-PATIENTS NETWORK

 

MEET fellows launched a crowdfunding campaign on kapipal website for collecting money in order

to help the “International Mito-Patients Network” (www.mitopatients.org), to develop a standard

therapy for dealing with muscular pain in mitochondrial diseases. The campaign objective is simple:

raising awareness about mitochondrial diseases and raising money to help IMP network to develop

a standard therapy for dealing with muscular pain in mitochondrial diseases. To launch this

campaign, fellows did a simple equation: mitochondria = energy = running, dancing, climbing,

biking. Therefore, as young and motivated researchers involved in the mitochondrial field they  run,

dance, climb and bike to raise money. Indeed, fellows believe that participating to sport events is a

very good way to highlight the importance and the power of mitochondria and thus the importance

of helping people that are lacking healthy ones.

 

Mitochondrial patients worldwide, as represented by International Mito Patients, benefit from a

good network between patients, researchers, clinicians and caretakers. And this is also valid the

other way around: researchers, clinicians and caretakers benefit from a dialogue with patients. This

is the main reason for IMP to work closely together with the MEET Project.

IMP Mission is to increase the quality of life for people with mitochondrial diseases by facilitating

cross-border cooperation and collaboration among national patients' organizations. So, it is for this

reason that MEET Consortium and MEET fellows will collect money for IMP, to underly once

again the importance of collaborating among researchers, patients and clinicians, to fight

together!

 

HELP US TO RUN FASTER!

MAKE A DONATION HERE!

MEET Project - Grant Agreement no. 317433 - Start date 14th Jan 2013 - Final date 13th Jan 2017 - Privacy and Cookies policy